We are the parents of Joseph and we want to tell the history of our little angel . Joseph was born on 21/06/2005 was at 36 ° week of gestation when they broke the waters and a spontaneous birth brought to the world our little angel. Born with no problem
weighed 2,450 kg was 49 cm long.
I 've been able to breastfeed just four days after he started taking milk powder. On 1
months had taken only 60 grams of milk because that type was not compatible with his body, after changing the milk has begun to resume. At the 4th
month began the first baby food, it seemed that everything was fine but we noticed that the baby does not gain weight, then took him by his pediatrician because the baby does not convince us; the pediatrician said, "Do not worry it's just because it was born small."
At month 7 has collapsed el 'we have brought to the emergency room, and after testing, the doctor who' visited became aware of not having a normal case, because the baby did not take his head was jerking movements not sitting and so on.
On her advice makes an appointment with the center NPI in Messina, a doctor specializing in the field, made the recommended test results arrive, the small apparent psychomotor retardation and hypotonia in the lower limbs.
The specialist urges a ecotransfontanellare and the result is not very clear, but the doubts he had were spaces not filled in their opinion was not formed myelin; start physical therapy after a period you do not see any improvement.
began the ordeal, because the baby did not sleep more at night, constantly crying was more sluggish in their movements.
It 's the only boy in the family and all love it, always there to comfort, to say that it's nothing, but as time passes and nothing changes. In the month of May 2006
We decided to take him to Rome, the baby Jesus
In June the hospital the day of his first birthday, after two weeks of hospitalization, doctors do not yet know what could have our little angel.
return to Sicily to wait for the results. In August
letter arrives from the pain which destroys our family: ( Leigh disease with methylmalonic aciduria, iperintesività signal in T2, white matter of incomplete Mielizia) described the findings are related to mitochondrial disease.
The respiratory chain showed a reduction of 50% of all 4, so they decided to continue to do research of genetic mutation SUCLA 2.
In other words, our son is not sitting, unable to walk, take no object, make jerky movements, does not speak, can not hear, do not eat alone, but is very intelligent.
doing research on the Internet we have seen that within 5 years may die.
Since that day our lives are become a continuous hatred, I could not talk to my husband, if we looked at started to cry.
Our little prince patient understood everything and we could not bear it.
My husband began to do some research, I will I shut myself in and my little prince to 3 months did not leave my house to not see other kids his age, talking, walking and playing.
Day and night I looked at him and cried, I was afraid to sleep because I thought that not wake up, so I wanted to enjoy it every time.
weighed 2,450 kg was 49 cm long.
I 've been able to breastfeed just four days after he started taking milk powder. On 1
months had taken only 60 grams of milk because that type was not compatible with his body, after changing the milk has begun to resume. At the 4th
month began the first baby food, it seemed that everything was fine but we noticed that the baby does not gain weight, then took him by his pediatrician because the baby does not convince us; the pediatrician said, "Do not worry it's just because it was born small."
At month 7 has collapsed el 'we have brought to the emergency room, and after testing, the doctor who' visited became aware of not having a normal case, because the baby did not take his head was jerking movements not sitting and so on.
On her advice makes an appointment with the center NPI in Messina, a doctor specializing in the field, made the recommended test results arrive, the small apparent psychomotor retardation and hypotonia in the lower limbs.
The specialist urges a ecotransfontanellare and the result is not very clear, but the doubts he had were spaces not filled in their opinion was not formed myelin; start physical therapy after a period you do not see any improvement.
began the ordeal, because the baby did not sleep more at night, constantly crying was more sluggish in their movements.
It 's the only boy in the family and all love it, always there to comfort, to say that it's nothing, but as time passes and nothing changes. In the month of May 2006
We decided to take him to Rome, the baby Jesus
In June the hospital the day of his first birthday, after two weeks of hospitalization, doctors do not yet know what could have our little angel.
return to Sicily to wait for the results. In August
letter arrives from the pain which destroys our family: ( Leigh disease with methylmalonic aciduria, iperintesività signal in T2, white matter of incomplete Mielizia) described the findings are related to mitochondrial disease.
The respiratory chain showed a reduction of 50% of all 4, so they decided to continue to do research of genetic mutation SUCLA 2.
In other words, our son is not sitting, unable to walk, take no object, make jerky movements, does not speak, can not hear, do not eat alone, but is very intelligent.
doing research on the Internet we have seen that within 5 years may die.
Since that day our lives are become a continuous hatred, I could not talk to my husband, if we looked at started to cry.
Our little prince patient understood everything and we could not bear it.
My husband began to do some research, I will I shut myself in and my little prince to 3 months did not leave my house to not see other kids his age, talking, walking and playing.
Day and night I looked at him and cried, I was afraid to sleep because I thought that not wake up, so I wanted to enjoy it every time.
A dedication for my son and for all mothers
" Avrei voluto volare, arrivare nel cielo baciare gli angeli e tornare da te per stringerti forte e dirti quanto ti amo.
Grazie a te ho capito che significa AMARE mi hai offerto dei momenti bellissimi quale speravo che non finissero mai.
Sei diventato un bel maschietto, ma la vita non è stata buona con te, dopo un paio di mesi che avevamo cominciato a conoscerti, la brutta notizia ha rovinato tutto.
Amore mio il tuo 1° anno avevo deciso di farti la festa più bella che un bimbo l ha mai avuta, ma invece quell anno sono stata costretta a vederti in un letto d' ospedale, vederti soffrire, piangere e distruggerti.
Ma non mi sono mai buttata giù, perchè io volevo e voglio godermi la vita insieme a te, your sister and your father.
I was mad, I could not believe I did not want to think that you could wake up one morning from your bed and you no longer smiling. From 21/06/2006
your life and our life became hell, no longer accept that you touched your father, I became jealous and possessive, fearing to lose.
My dream of having a special child has become a reality.
In life no one appreciate the peace, health, happiness, 'love and the sweetness of having a family.
But when you wake up one day and discover that the baby you have always wanted is not as you wanted, you do not know if the evil is in life, if the 'selfishness el' hatred are something.
The little angel is always sweeter, make people understand that it really means to love and be loved. He can not bear to see
quarrel or cry, but when I see you give kisses, smiles constantly.
A thought from the eyes of my son in my heart
sent to all those who are suffering like us
sent to all those who are suffering like us
"I'm looking at the sky that is showing me so many designs,
Love, Life, Peace, Joy, I'm seeing this mom, I think?
Have you ever watched kids when they play?
We are seeing what they want.
Have you ever looked at the eyes of a sick child? There
shows sadness, but inside inside, c 'is a great desire to live, love, rejoice.
Have you ever tried to play with the children when they are sad? No. Because you
large could never understand what
need to be listened to and loved.
Mama, I feel that I am sick, I see it, but you always say
that are special.
run all day, but do not look at this speed
hurts.
stop, listen to my thoughts, reaches out,
I'm here waiting for you, I miss my mom,
not the woman who tries to cure me.
Please stop by, listen to children who call,
Hear a little heart, just look around, We are millions of children
special try a bit of 'love and do not turn your back
thinking that we do not understand.
This is the wish of my son sent to all those who have special children.
Love, Life, Peace, Joy, I'm seeing this mom, I think?
Have you ever watched kids when they play?
We are seeing what they want.
Have you ever looked at the eyes of a sick child? There
shows sadness, but inside inside, c 'is a great desire to live, love, rejoice.
Have you ever tried to play with the children when they are sad? No. Because you
large could never understand what
need to be listened to and loved.
Mama, I feel that I am sick, I see it, but you always say
that are special.
run all day, but do not look at this speed
hurts.
stop, listen to my thoughts, reaches out,
I'm here waiting for you, I miss my mom,
not the woman who tries to cure me.
Please stop by, listen to children who call,
Hear a little heart, just look around, We are millions of children
special try a bit of 'love and do not turn your back
thinking that we do not understand.
This is the wish of my son sent to all those who have special children.
To cure our little angel, we need a fundraiser to address the costs and specialist care With this message we hope that your sensitivity we can bring good results to start a new path. .
NB: Thanks to everyone who can contribute to the fundraising per il nostro piccolo Joseph. Recapito Cellulare
NB: Thanks to everyone who can contribute to the fundraising per il nostro piccolo Joseph. Recapito Cellulare
340-0606890 E-mail doryan2007@libero.it
BANCO DI SICILIA unicredit S.P.A BARCELLONA POZZO DI GOTTO (ME)98051
C/C INTESTATO ACCETTA ROSARIO
N/C 000300619055
IBAN IT 85 L 02008 82071 000300619055
POSTEPAY INTESTATO AL SIG.ACCETTA ROSARIO
N/CARTA.4023600578933410
N/CARTA.4023600578933410
CAUSALE
(UN AIUTO A JOSEPH)
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